Modernising Medical Microbiology
Patient & Public Involvement and Engagement Strategy 2018 to 2021
Modernising Medical Microbiology (MMM) is a research Group aiming to transform how we analyse and treat infections to improve patient care. (http://modmedmicro.nsms.ox.ac.uk/projects/). The Group is one of the largest working in infectious diseases research in the UK.
The MMM Group acknowledge that patients and community members bring particular insights based on their personal experiences as users of the health service. Involving these people in how research is designed, run and managed can help to improve its quality and relevance, as well as make sure its results are shared as widely as possible. Furthermore, as our research is publicly funded, it is important to raise awareness of the work we do, thus involvement, engagement and participation are encouraged and opportunities to develop these activities are undertaken wherever practical to do so.
In September 2017, MMM launched our three-year Patient and Public Involvement and Engagement (PPIE) strategy, which was developed by staff and key patient / public representatives. We have recently refreshed this document and below is our updated 2018-2021 PPIE Strategic Plan which was endorsed by our PPIE Steering Committee.
The definitions of public engagement and involvement used by our Group are adopted from National Institute for Health Research (NIHR) INVOLVE (http://www.invo.org.uk/).
Involvement: When research is done with the public and not to them
Engagement: To provide information and knowledge about our research to the public.
We aim to involve the public in every level of our research activities, from how they are first thought about, to how they are planned, run and the results shared with the world. We also aim to use existing and new ways to communicate the results of our research to a wider audience, especially key public health messages which arise from our work.
We want to create opportunities for patients and lay members to interact, engage and contribute to the research that MMM performs. This is to:
- Improve the quality of the research we perform
- Ensure our research questions align with the priorities of the wider public
- Communicate the outcomes of publicly funded research with individuals who may find this information relevant, useful or interesting
- Inspire adults and children and promote careers in research and Science, Technology, Engineering, and Mathematics (STEM)
- Explore novel means of communicating healthcare research with a wider public
These will be achieved through a series of activities, examples summarised below:
|Standing Activity||Engage / Involve||Target Audience|
|PPIE Steering Committee meetings||Involve||Lay representatives|
|Developing public facing materials||Involve||General public|
|Museum talks||Engage||General public / children and families|
|University open days||Engage||Students|
Further activities will be discussed and agreed at the regular PPIE Steering Committee meetings.
Resources / Partners
MMM have received public engagement funding as part of broader research grants from the following organisations:
- National Institute of Health Research (NIHR) UK Health Protection Research Unit
- National Institute of Health Research (NIHR) Oxford Biomedical Research Centre
- The Wellcome Trust
- Bill and Melinda Gates Foundation
- Economic and Social Research Council
- Natural Environment Research Council
- Medical Research Council
All funders have an expectation that we conduct PPIE activities throughout the length of the project.
Since 2010 internationally renowned artist Anna Dumitriu has been our Artist in Residence. As part of her residency with Modernising Medical Microbiology she shadows our researchers and develops artworks, exhibitions and events that explore the research we do and its impact on the treatment of infectious diseases and the care of patients. She has subsequently gained independent funding from a number of research and arts organisations to continue her work with MMM, publicising our work to a wider audience internationally, and contributing to our own PPIE activities. For more information, please visit our website: http://modmedmicro.nsms.ox.ac.uk/art/
Key roles & Responsibilities
|MMM Group Leads||Overall responsibility for delivering the PPIE strategy and for supporting the Project Manager lead for PPIE. Professor Sarah Walker is the Group Lead with overall responsibility for PPIE.|
|PPIE Steering Committee members (lay representatives and MMM representatives)||Responsible for contributing to MMM PPIE events, including framing research questions, reviewing grant applications, lay summaries, patient-facing material (with commitment depending on individuals’ time and interests). Responsible for communicating their work with the MMM Project manager PPIE lead.|
|PPIE Lead (lay representative)||First point of contact for lay members. Responsible for leading and contributing to the PPIE strategy and contributing to Steering Committee meetings. A more detailed description can be found here: Lay representative role description|
|Project Manager lead for PPIE||Responsible for co-ordinating with project leads, research members and public members to organise and deliver the PPIE strategy, and organise MMM PPIE Committee meetings. First point of contact for patient/service user representatives or any members of the public wishing to become involved with our research.|
|MMM researchers and members||Responsible for contributing to PPIE activities organised by MMM, and identifying engagement opportunities within their own professional networks.|
Lay representative role description
As part of our overall strategy we have included a requirement in job descriptions for all research staff to participate in PPIE activities. This is reflected in all job descriptions, is monitored throughout the year and is part of annual performance development review. Lay representative role description
There are various training options open for research staff and PPIE representatives that will be offered. These are supported by the Oxford NIHR Biomedical Research Centre.
PPIE Evaluation and Impact
All PPIE activities will be evaluated by the researcher who is leading the event. This involves providing a summary to the Project Manager Lead for PPIE and completing a short evaluation. Where possible, feedback from the community will also be sought at these events. Refer appendix A for evaluation template.
OBJECTIVES AND ACTION PLANS
|To continue to ensure strategic input from patients and the public||Recruit additional lay representatives to the PPIE Steering Committee|
|Schedule regular PPIE Steering Committee meetings (minimum 3 per year)|
|Ensure all new major grants have input from PPIE representatives, including funding request for PPIE activities, and are assigned a specific lay representative to be more closely involved|
|To encourage and facilitate MMM researchers involving lay representatives in their own work||Maintaining a section in the Wiki (on Weblearn) containing PPIE resources, stories and examples|
|Invite lay representatives to Group meetings when appropriate, particularly if they have been working on a particular project being discussed|
|Confirm that staff have participated in PPIE activities by means of yearly Performance Development Reviews.|
|To improve communication networks and publicity around activities||Maintain a dedicated website page and social media platforms that includes information aimed specifically at patients and the community|
|To communicate about our work and our findings through attendance at patient and public engagement events, and through our schools outbreak programme|
|To create regular newsletters which describe our PPIE activities|
|All researchers will be expected to communicate to their relevant Project manager when a scientific paper is accepted for publication and provide a lay summary of their research for the website and as a resource for the press offices. The Project Manager lead for PPIE will work with local communications and press offices (and other organisations where relevant) to publicise the work.|
|To improve the resources available for PPIE||All grant applications will have requests to cover expenses for public representative activity as appropriate|
|The Project Manager lead for PPIE will produce and maintain an inventory of all material resources available to MMM – including games, puzzles, leaflets, artwork and posters, and establish a storage system to ensure they are accessible to researchers|
|To improve planning and integration of PPIE activities at the point of grant writing||All MMM researchers will be asked to contact the Project Manager Lead for PPIE at the point grants are being written, to ensure involvement of PPIE Committee representatives|
|To improve the recording, reporting and review of PPIE activities||Create and maintain register of all PPIE activities|
|All researchers will be asked to communicate with the Project manager lead for their relevant project/grant when PPIE activities are being planned. This project manager will liaise with the Project Manager Lead for PPIE|
|All researchers will be asked to submit a brief report of the activity to the their project/grant Project manager Lead for PPIE|